Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB125

Online Survey DAB125

Ymateb gan Cyfrannog ar-lein 125

Evidence from Online Participant 125

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

02

Not sure

03

Not sure

I think they have to be involved but I'm not sure I trust either of them to do it properly, to keep their staff up to date with current knowledge, and work in the interests of autistic people rather then of those organusations

04

Yes

05

It depends what the start point is. If their going to use that time to consult and listen then it might be reasonable

09

Yes

10

Yes

I would go further and say it can set people/categories who must be there to ensure the assessment is well rounded and covers all areas

11

For adults, someone who can help with specialist needs in getting and keeping down a job. For those in education, those who can directly help with this area and school liason etc

12

prejudice, fear of prejudice. Also anxiety in making and keeping appointments which mean autistic people dont manage to obtain things, or even thrown off nhs waiting lists or benefits because of non attendance when this is due to hyper anxiety and lack of support. But often you cant get the support if you dont manage to tuen up to appointments so its a catch 22.

13

Yes

14

It should also say what it is not appropraite to collect

15

Not sure

16

depends who? and on the nature of tne informatipn?

17

Not sure

There's not much point raising awareness unless the law specifically denotes particular up to date information/understanding to be passed on and then checks that professionals actually have this understanding- not just specialists - but also GPS and classroom teachers. After all everyone THINKS they know what autism is it's just that most of the time most of them are getting it wrong. I find as an autistic mother of autistic children that we get far more prejudice from professionals than from laypeople in the community as a whole. This is something that needs to be tackled. From this point of view educating/raising awareness isn't something separate from creating appropriate support, but part and parcel of the same projects.